Looking Again

Sometimes our kids require a double take. What at first presented as misbehavior, hyperactivity, or whining over nothing can often, in our case, turn out to be a symptom of earlier hurt feelings, hunger, or the need for an introduction or some extra explanation.

With each subsequent kid, we have realized we are less and less expert when it comes to parenting but also more and more here for it. Parenting is baptism by fire, every time! We know that we don’t know (whereas after the first one ate his veggies and went to bed so easily, we thought we likely KNEW), and that seems to be the key to keeping our sanity, give or take.


As the kids grow up and sadly don insecurities and defense mechanisms, vegetable intake has taken a back seat in the world of things calling my attention. Their emotional languages couldn’t be more different and in a world of male privilege and emotional unintelligence, it’s so deeply important to me to raise these guys with some wherewithal when it comes to caring for others and knowing themselves. To me, emotions are not the bad guy. I’ve heard endless sermons and read enough that the modernist alienation of the heart and emotions is resilient and damaging, especially amongst Christians. I’ve told my kids, and my self, that feelings aren’t the boss. But they also aren’t the enemy.

When people experience personal grief for the first time, or are hurt in an abusive way, what does the message of alienating the heart and emotions do to us? It isolates and shames. It invalidates a real and true indicator light on the dash of our designed personhood. Some people have a great heart read on situations, and their memory is feeling-based AND accurate; some people are more oriented out of their heart and function best when there is no requirement for them to translate their wisdom into knowledge. Emotions aren’t the boss, but neither is rationality. Because while “being rational” seems like a trump card, it can be as laden with cultural blindspots and sinful motivations as any old heart. It is intertwined with a toxic masculinity that has hurt women and men. It’s not no nor or; it’s yes and both. In my beliefs and experience, Jesus shows concern for feelings and the heart; His redemption and example have as much to do with seeing and renewing our emotions as much as our minds. Western society likes to differentiate and categorize but I haven’t seen many lasting examples of that being for our good. Shalom is wholeness. Integrity is integration.


In my line of work, it’s important to validate the heart. I know their assertiveness, intelligence and physical strength will be affirmed; I don’t know their sensitivity and emotional awareness will be valued.

When one of my kids mentions something he would like, for the next week, or the next year, he often says, “…but it’s okay if it doesn’t happen” in the same breath. He so rarely asserts a particular opinion, that when he does, he seems to at once try to bulwark against the disappointment of that opinion not being heard, or that hope not being fulfilled. While some part of this is a gift for gratefulness and adaptability, another part of this has alerted me to his disassociation with some of his feelings and need for emotional safety. He’s hardly ever said the words, “I feel…” so we have to hear them in other ways. And in a raucous household with a lot of needs, it’s easy to miss his particular feeling voice.

The other night he mentioned softly that he would like to dye his hair for Wacky Wednesday…followed of course by a quick forgiveness. We are run-of-the-mill people when it comes to these “holidays” that seem quite frequent to us old-fogies. It’s always about finding stuff around the house, making do, and celebrating that we even remembered the occasion. But that night it was different. We didn’t have anywhere we had to be. I asked him more about this hair dye, and he lit up talking about some ideas. I quick cleaned up dinner. And he and I stole away for a rare and special hunt for spray hair dye, just the two of us. At our second stop, we found the last can of red spray; he was elated. The specialness of going out and buying something was not lost on him. He said he’d share it with his brother. He couldn’t WAIT for tomorrow.


It gives us such joy to see and respond to a child’s need or desire. This story is one of a silly wish that wasn’t formative to his emotional intelligence, but it sure meant something to him. It helped me too, to join his spontaneity, to say yes, your opinion is something we want to hear. I could’ve easily missed it.

This same kiddo mentions every couple of days a new piece of information surrounding the same subject: our dear next door neighbors are leaving town this month for a faraway state. He isn’t sharing feelings or emotional, but just mentioning, in the middle of homework or right before bed, “It will be before Easter,” or “It’s 20 more days after we do that.” I’m feeling this particular loss hard too, so it is helping me be more sensitive to his signals. I’m wrestling with how to help each of my kids on this countdown journey to saying goodbye to some lifetime friends. Sometimes it’s only in bed at night that I realize they’ve said something, or shown their grief. Each mention is an opening for a couple minutes before dancing to the next topic; each fact a window into the things on their young hearts and minds.

The double takes of our kids is a rhythm of parenting; these little creatures come coded and skinned in all sorts of maneuvers and languages and take on more because of us. It’s never too late to look again.

With each child, and each stage that goes by, the lesson of double-takes has been worthwhile and ever-evolving. It instructs me in grace towards other people’s kids, and other adults, and myself even. We all show these windows. And our reactions are interpretation. There’s more than what meets the eye, and what a gift to our hearts when someone looks again.



A God Who Picks Up Legos

Church on Sunday was about the treasure. It seems like such a juvenile metaphor when I think about finding a treasure in a field, or the pearl. The whimsy, the luck, the certainty…all seem somewhat mythical. But our pastor encouraged … Continue reading

The Persecuted Church, the True Self, and a Lost Story

Growing up, a lot of traps were pre-determined for me, and I was a hospitable Type-A place for accepting these immanent perils seamlessly. Through osmosis I gained a robust wariness of other ways of thinking, to both my benefit and my harm. I was a good host to the necessary and superfluous transplants–of right, ordered, and true, and the red, white and blue. There were so many traps to beware of; vigilance found a home in this Enneagram 1. To name a few: The liberal agenda. Those who baptized infants. Immodesty. Gays. Sexuality period. MTV. People who wouldn’t learn English. Feminism. Ferngully. People who wanted to take advantage of the hard work and generosity of others. (I did not grow up in fear of gluten, however, and I devoutly continue in this doctrine.)

When I read Psalm 31 with this sense of Christianity, I understand why the church can become a somewhat bureaucratic enclave of similar-thinking people. The WORLD is out to get US, and the vulgar and sinful traps of the other people are encroaching. The unity births from what is going on on the outside more than what is going on on the inside and the motivation is about safety and adding to the numbers. While a victim mentality is so often hurled as a discrediting insult to those reliant upon public aid or protesting systemic injustice, it also describes a segment of the Christian Church that primarily understands itself as persecuted and, therefore, justifiably and righteously self-protecting.

Of course the whole of scripture, the arc of the Story, warns us that the traps are much sneakier than Us vs. Them. The traps are inside the sanctuary. The snares are inside the postured martyr herself.

As humans, we look inward increasingly as we grow up. I might invite the Divine to show me where I am and what God would have me see, change or grow, as I become more self-aware hopefully. Parts of my defense mechanisms and the distorted lenses I use to view the world and God will hopefully become less required for survival, and less important to my story; those could be considered false parts of self. In exchange for the arms length between limiting but useful mechanisms of protection and performance, I hopefully gain greater value for things that do not rely upon circumstances–the true self God endows us with, that Jesus makes possible. The false self is not to be shunned and ignored as though it never had a purpose or affected the journey and relationships now, but it must have space enough to be examined and dealt with.

So too, as we look inward on this Bride, though our talk of Her is always imperfect, we grow in Self-awareness as its bought in members. We examine it as subparts of the one, holy, apostolic, catholic Self of Church for we are it. Good and bad. False and true. When we take inventory of where we are as Christians, we grow in the ability to peel away parts of the false Self we have collectively adopted and inherited and passed on, and, because our story is redemption, find a truer Self.


As I have looked and considered more of the underpinnings of this polarized time in our one-ness, and thought more about my background and the outspoken evangelical voices of the day, at least one thing has come into focus. One thing about the American Church’s false self has become clear: Whatever unity that comes from a collective sense of Christian-centric persecution has increasingly become a toxic and alienating death sentence.

It’s not that Christianity is in vogue. It’s that it’s not even a part of the conversation (unless you count political exploitation). And therefore, it’s not a band of the persecuted and the hunted. Self-protection limits the adaptability, discernment, compassion, and generosity of its bearer. Adopting this orientation has skewed our identity to a degree that causes us, 100 steps down the line (i.e. Franklin Grahams and Rod Dreher…), to resemble nothing of our Story, our Savior, and our supposed Hope. This false self in our Church has run a muck and instead of being simply irrelevant to our culture, we have become an official mechanism of hate and hypocrisy. It turns out the bunker is very, very deep. Insofar as we allow leaders with this worldview to represent this Church, our meaning will be continuously hijacked by a paranoid and bizarre narcissism. Where did the Good News go? Who is in charge of Our Story?

By placing ourselves as the sympathetic central character of every social and political scenario, we have normalized and prescribed the dismissal of truly vulnerable groups of people and problems that are actually central to our collective identity and creed. Or, in other words, imperative to our true self.

This reckoning time is heart-wrenching and the R-rated times this presidency has brought forth has certainly shed light on places that previously enjoyed a blur. Light, we believe, overcomes darkness. But it is grim to wake up sometimes.

May we release the traps we set in our sleep and wise up to the ones around our necks. May we listen to the prophets and shut up the liars. May we turn to the leaders who have walked with Jesus in this Church, without enjoying any power or privilege for doing so. May we reach a truer Gospel Self as we re-find our Way.


A Suffering Community

I am grateful to learn through experience and study about suffering, privilege, and the ways in which I miss out when my life is situated to buffer against pain. A 2nd article is up on The Table today, just scratching the surface and sharing some names that have been so helpful to me on this continuing journey. I continue to open up to the suffering of others and the vulnerability of this Kingdom walk, reliant upon the community and the Christ found in these margins.

Dear Mary

//..dear mary..//


in the wake of the sacred and design of diety
your gift was disguised as scandal,
the angel did not appear to

how did you give birth to the rest of your life, tomorrow
when the lies, the looks, the silence
dragged behind you an ugly train

the arms can be full, the heart warming, but eerily
more alone than ever in truth
because they don’t ask, only tell
myths alone

sleeping beside the savior some nights was not enough
in your youth, how did you turn deaf
to the persecution you met
bringing light

dear mary, everyone believes you now, but too late
to provide comfort to your night
as the knowing silenced woman
pregnant still

I Invite Myself to My Own Dinner

Preemptive parenting is my strategy. I have a running schedule and clock in my mind at almost all times because either it’s how God made me, or I’m a catastrophizer. I dislike being late, being complained to, and being under pressure so much, I will put the 6-year-old down for a nap, I will start Operation Shoes and Socks 15 minutes before we actually need to leave, and I will pack back-up Goldfish, gum, diapers and wipes in the car because so often in Los Angeles, we are without access to food, other people and stores.

Preemptive work in relationships requires a lot more vigilance and gumption. While a Christian woman might be affirmed for being prepared with a kids travel game or for bringing snacks, she is not usually applauded for boundaries, saying no, or sharing her expectations for an event in advance. Those are typically assigned negative hues of guardedness, selfishness, being a control-freak, anal retentive or other suspect characterizations (I have heard…).  We are trained to defer, accommodate, submit, overlook, and serve. While at times these actions can be great strengths and hold within themselves a powerful freedom and love when chosen, they can also enable the entitlement of other people to the diminishment of our own personhood. We are not destined to become smaller; it is not our job to disappear. 

Going into the weekend, my spouse and I often have expectations for the precious 48 hours. They are generally competing.  Going into the holidays, we may all be facing the same dilemma, only with the added help of multiple-day road trips, long-distance family suddenly sleeping in the next room, candied children, and, if we’re lucky, bacterial infections. Nothing says joy and peace like spilled juice in the car, sliding around snowy passes next to semis, mysterious and constant appearances of glitter and snot, and off-colored jokes from the uncles, ammiright?


I’m just here to say, if you can pack a diaper bag in your sleep, or have thus far managed to feed, clothe, and bandaid actual living people, including your self, you are allowed to say “no,” or “I want,” or “we will.” Merry Christmas. The safety and intimacy of our relationships relies upon our exercising agency and boundaries. Particularly for those of us who struggle with anxiety, depression or addiction.

It’s not about controlling others or being rigidly closed off. It’s about self-awareness and working from the best part of your self and not the worst, or fastest, or most sensitive. Preemptively making a plan to cut off chaos at the pass.

This may look like extending a request along with an invitation: would you be willing to not discuss ______, or isolate anyone in conversation regarding that topic? (And if this does happen, my family and I will be taking a walk.) It may mean saying ahead of time that you will be leaving by 9, when things really get boozy. It may look like staying at a hotel instead of your childhood bedroom, with the nephews and the giftwrap. It may mean scheduling alone time, and letting your host know you won’t be around Friday afternoon. It may mean using paper plates no matter what your mom thinks.


What are your expectations for the rest of this year, which, for the most part, has been really challenging? What concerns do you have going into group gatherings and which of them are valid, addressable, and likely shared (ie: managing uncle bob’s anger, not addressable; making a plan for when it is triggered, absolutely)? What would it mean to experience the holidays with freedom and presence rather than anxiety and reactions? (“While we love traditions, we won’t be squeezing in the movie this year between presents and dinner; we’ll see you when you get back!”) What preparation and communication would help these times be building rather than destructive? Who are the safe people who can help you stick with the plan?

I encourage you in your preemptive policies. I cheer you on as you exercise agency, take your heart and brain seriously, and invite others to do the same. It will be a gift to the people ready for better relationships; it will be a model for our sons and daughters.

When I think about it, my relationships and the way I enter 2018 are at least as important as how many snacks I’ve packed. It’s time to get planning.


My Brother and Me

It is an angry time and anger is my signature vice, according to the enneagram, and, maybe everyone, so I’m kind of in Anger TAG. Nbd.

I’m finding it is not an opportune time to be a Christian, a proponent of power/class/race reconciliation and civil discourse, and an outspoken woman because, aside from the obvious perils, there are many opportunities to just fall flat on my face in a puddle of hypocrisy and/or feel like I’m dying trying every. single. day. And I am likely judging people as I go down, disappointed, but I’m on the top of my own list. It’s not opportune because it’s excessively challenging, but maybe easy was never the point.

It’s not an opportune time to preach grace when there are so many landmines, mistakes, envelopes pushed and lines in the sand. I’m praying that in the midst of all this reckoning, we will regain our souls, our North, and forge a new identity as Christ followers. It hurts, like tearing off a bandage of superglue, but necessary for healing.

But in the meantime, we are human, and he is wrong, and I am hurt, and many of us are all doing it as openly as possible because we care and push has come to shove.

My brother and I have one of the most infamous and observably difficult familial relationships on Facebook that I know of. We have had periods where we decide it’s best to not be connected on that medium, present included. We have had other seasons where we respect one another’s corners and pay each other no mind…but there is a tipping point and undoubtedly we strike up a “conversation” for all to eavesdrop and weigh in on. We do this knowingly. Our dear parents try to busy themselves elsewhere, like kids do when the parents fight. Our conflict-avoidant family members grimace. Our younger siblings, who often have stakes, watch quietly. Our respective fan clubs help. It’s all very beautiful and sagely and calm, in the way mud wrestling or Black Friday doorbuster shoppers really just uplift the senses.

I have a point.

My brother and I have a tremendous amount in common. What we lack in shared DNA, we make up for in common experiences such as being adopted from South Korea as babies, living in Montana and Oregon, and then moving as pre-adolescents to equatorial Nairobi. After some international travel and a revival of sorts in our parents’ faith, we found ourselves in the low-key church public eye as missionary kids. We went to every sort of school, and ended up attending an international Christian school in Kenya, he for 7 years, me for 4. We were joined by three significantly younger siblings there, and watched the news of 9/11 from BBC reports and Kenyan news in a not entirely sympathetic student body. We’ve walked the sewered paths in urban slums; we’ve ridden through the savannah on roof racks, facing a herd of elephants. We’ve also both had the unique experience of moving back to the west coast of the US, attending private colleges and re-connecting with extended family, sending churches, and one another, while our parents and younger sibling remained overseas. Growing up we couldn’t agree on how to fold a shirt, or what should be packed to Kenya or where to go out for dinner, but no one has charted the same path we have traveled but for one another. And that has been a good gift and a wonder as we consider our unconventional stories thus far. It’s good capital to have in the bank as we navigate relating in our present political tumult.


As adults, our experiences have diverged. He’s rural, I’m urban; he’s Air Force, I’m non-profit. He’s Wyoming, I’m California. We have spouses, kids, bills, wrinkles, and Facebook now. And we’re still growing up.

After a week of recent conflict, which first occurred on Facebook (as we do) and then behind the scenes through texting, my brother called me–aggressively. Like actually wanting to speak aloud. The typing interactions were not ugly but they weren’t exactly congenial. I had called (and by called, I mean I stated via text) for another Facebook break up, and he apparently doesn’t try to avoid the phone as a talking device like I do. I groaned as I answered.

He pursued. We talked and had a productive conversation. He understood more. I understood more. Fists were not raised. There were no one-twos or referees. There was a brother and a sister, who online, and in many other regards (for example, folding a shirt like a nincompoop or not), are opposites. In practice though, we both care an awful lot. I remembered his caring, loyal self. His investment and sympathy towards his community; his sacrificial work for a few, who’ve had a rough go. His reactions are mirroring my own undying commitment to a few, who’ve had a rough go. I told him I didn’t like his sources. He told me he doesn’t see the problems I do. We talked about Christmas.


It reminded me of a recent Bible study I was a part of. The Sheep and Goats parable was discussed and one person had a different understanding of the passage than I have carried; the feeding, the visiting, the inviting, wasn’t as much a social and determining instructive to this man’s understanding as much as a natural fall out of being sheep already, and first and foremost the movement was towards those in the flock, the “brothers” of the ESV. This person is learned and wise, and while I differ from his interpretation, I let the tension be. I know the habits of this man. He is loving, sacrificial, and spends extra time in prisons, with the least of these, opening his door to the poor in spirit. Truly, naturally, he is practicing in the way of the sheep of this parable, of those who the Lord recognizes as His. By word, I may feel more comfortable with twenty other Christians’ read but their actions may show nothing. I’d prefer the first arrangement.

Like him, my brother’s life, in practice, is not opposite in character than my own. We have seemingly opposing environments, lifestyles, and definitely opposing media images but I am comforted by his love for others. For all that is behind the scenes, for all the similar that no sharing of articles can confirm nor deny. And not because he’s more like me than I thought, but simply because he’s striving to be loving to his people, including me. And in doing so, he helped me develop better empathy and understanding. And gave me the opportunity to do the same. Cheyenne to Los Angeles. Seoul to Nairobi. Who knows what the future holds.

The truth is tangled. Our anger gets misrouted. People are usually much different than in the 2-dimensional spaces we observe them, and this is generally a good thing. Our relationships are really at risk. I wanted to share these stories with you because I can talk in broad strokes about faith, and loving others. I can champion the underdog in my way, promote civil discourse, and preach giving the mic to those with less power… but I’m in the trenches of this too. If I lose the ability to relate with people closest to me in the midst of activism, I have missed the mark.

In case it wasn’t clear: I mess up all the time. I’m still writing midway. I’m making mistakes, I need grace, and I am learning and falling, and learning too. Despite all the errors of the past couple weeks, heck hours, there are good things about push coming to shove. Anger and discourse are necessary for there are a lot of things to be vigilant about if our faith matters a bit. In the midst of the fight, pushing in, like my brother did, is better than writing off. Pushing in will help us get there, without losing each other.


(This was posted with my brother’s blessing.)

My Unbecoming

Women are unbecoming.

They are unbecoming the silenced one, the interrupt-able, the indirect object, the first apologizer, and the compromised.

This is not a scary thing if we believe that success and shalom for women are not inherently threatening to the success and shalom for men. And other women. And everyone. What if we did not assess humans competitively?


I am only 33 but I am unbecoming. I’m unbecoming my childhood shame and guilt that made me nearly perfect, as I examine and re-examine the unkind behaviors of my child. I’m telling her she’ll be okay as we take the time to look at his heart, behind the cutting words and punishable arrows. Behind the performance and the pains.

I am unbecoming the self-righteous sensitivity that, like a clam shell, seemed to protect me, but then, turned out to isolate me instead. No pearl was forming, only imagined; all orthodoxy, no generosity. Like Beth Moore recently said, liking fewer people and calling it sanctification. No clarity maintained, eyes closed. In my fear of worldliness, I blocked human goodness; in my disdain for darkness, I blocked the light. I am unbecoming the closing.

I am unbecoming the reluctancy to say I was wronged, or hurt, or impacted. I am unbecoming a stoicism that the clam took well to and the patriarchy approved. I am undoing the dishonesty that other people’s comfort demanded; I am recovering from my own learned deafness to my needs, hurt, and worth. I am unlearning the lie that looking at something gives it infallible power.

I’m only 33 so I have only started to see the things God’s inviting me to unbecome. The undoing is not as a sweater unraveled, a heap of chaos and wonky, but as a first shoot from a bulb, headed up, having a taste for light. A mystery, a toil, to be sure, but a gift in this gift of time. Unbecoming into who I am better being.


Also there is becoming. Women are also becoming. Definers. Decision-makers. Comfortable. Singular. Pervasive. Connected.

It can be hard to not trap the becoming, the new, in the unbecoming, or the old. It is hard to keep the two separate and moving, like siblings. For me, this includes the wildernesses of domesticity and being a woman in 2017 specifically. The ways to help, the gaps in our society, the cultural shifts, the breaking down of Christianity in our context, the new science, the recent poll. The conversations and opportunities that meet me each day, new pages, fresh print–not to be jammed in an old drawer and defined by an old construct.

It requires courage to not automatically reach for the old drawer, the last language. The becoming lessons are new to stay new–to start brand new hope, conviction, and relationship. Framing them in the past makes the lessons fade and compromises the work of unbecoming. We are brave when we look with curiosity. The situations my children face, that children before have never faced. Failures and successes that need to stand on their own two feet. The becoming is daunting in its own way because we don’t have the syllabus and the deadlines are moving; constantly, we are asked by this life to show movement, memory, and change–in this becoming, we are never finished.

Shalom, if we can dare speak of shalom within the world of only one person, is the overlap. When the lanes of the unbecoming and becoming merge. When the past isn’t too heavy but its substance is polished, and when the new isn’t hype or cheap but tailored…I suspect those moments when our gut, and mind, and lungs, and prayer, and worth are full, those are the times of most truth.

I pray for this work of unbecoming and becoming, a dotted line between the two in their youth. Traveling companions, but different journeys, each needing to stay in their lane for the most part. I pray for divine differentiation for healthy attachment; that the becoming would not have the lid of unbecoming, and that unbecoming would not go unnoticed in the fervor of becoming, and that both would help us be true, and full, and sources of shalom. I pray we would have people in our lives helping with each, pulling us to do whichever one comes least naturally, applauding the overlap, cheering for shalom.


May you find the dotted line to occupy both spaces.

Undo, and new, ever human, going deep.

Unlearn, and discover, safer still, you and me.



God, Grief and Group Projects

There are times when it seems inconceivable to believe in a God and those are the same times I’ve found it impossible to breathe without faith. Each breath requires a prayer. Each prayer a resistance to turning stone cold.

The air tight apologetics I was raised in, that tried to make story irrelevant, emotions sap credibility, and choice an insult, are a vapor. It is only the story, only the feelings, only the choice to believe in these moments when we cannot get warm. And what good is faith if not for these moments? Where proofs and data were intended to bulwark (bully?) faith into being, the test of life, of exposure to suffering, of engagement with my internal world and the true external world–those pulled me into immersion in this faith river. Those were in fact the currents that keep me and hold me, when all else has failed, and me right along with.

I’ve been asking God, Parent and Creator, I Am that I Am, “Isn’t it too much?” The attacks, the weaponry, the assault, the epidemic of lies, on the airwaves and on my street–it just. never. stops. More so, isn’t it too much, what my friend has had to bear? And that friend, and this friend, and that family member, and that country, and that people? How, God–how are people supposed to pray, to give, when they are rampaged by suffering, betrayal or disappointment–by inconsolable grief to every cell of their being? How can you expect us to believe in You under the weight of this breaking?

Is there a way to find you God, to find Love, real, not through the threshold of pain?

Is there a way to edit Gethsemane and Golgotha and keep the empty grave?

Before I knew real pain and injustice, my sturdy and safe faith was clear and confident. It’s not to say lacking in value, nor deny it a piece of the puzzle, but it was as skinny as a pre-teen with an early growth spurt–all bones and corners and a little anemic.

It’s just not that straightforward anymore. And it’s also not such a lightweight.

In the moments of highest exposure, greatest pain, and deepest grief, we are naked before God. The garden story, to me, is not only about guilt and shame but perhaps more about grief and isolation. When tragedy falls hard, there is no where to hide and we want layers and holding and concealment. Oh to have the weight of something covering, of absorbing the racking sobs, of comforting the abandoned child within.


Impossible is the new story, and the only way we make it into the next moment is thinking, hoping–believing?–that impossible is not the end of the story. Faith is setting our eyes outside of our raw chaos–daring to think that the people who we find next to us may be of some help–that the lineage we come from, the story we’ve been ingrafted into, will repeat. The story of suffering into love. Of grieving into wholeness.

I walk with tender and vulnerable people. I am a tender and vulnerable person. Not one person whom I really know is whole. I used to see people as whole; I used to expect people to have it together. To generally be doing well. I saw them as independently successful or overall autonomous. Now, the wholeness is only done in groups. When our broken pieces, our faith, and our love for each other melt into a whole, the sum greater than the parts–the impossible becoming possible, a minute at a time. When the holes of self become seen and embraced, when the grief is given over to, and we split the bill of life, when the victory is relief lighting all pairs of eyes–this is wholeness as it was meant. This is shalom that will stay.


And somehow, tomorrow happens in this way. Somehow the crying takes pauses. The shameful parts don’t seem so paralyzing. The death doesn’t define the life. The suffering breaks into love. And our resources are multiplied. Our generosity renews itself. Our faith is linked and sacred anew. It turns out we were made for this. It turns out everyone is doing better when we’ve all shown we’re doing a hell of a lot worse.

This will only make sense to you who have carried your stomachs in your throats for days, who also soak your steering wheel with the occasional cry fest. You’re not alone, you who audaciously prayed despite the circumstances that merit calcification of the heart. If you are searching for covering, if the cries are muffled, I hope you will ask for help. Reach and grab someone before the mask is clad, before the thoughts take over and spiral you into isolation. Include another soul into your hole-ness, and find yourself more whole than you thought. Let someone be more of who they were made to be by including them in your grief. Pray a breath prayer as a radical ellipsis into the future. Give something out of the bankruptcy and find your own anxiety and impossible a little farther away. Be undone and in turn done in by the connection and comfort of others, God incarnate.

I don’t know if God is known resiliently without deep acquaintance with suffering, but I know for us it’s been the best introduction. Regrettably, and redemptively, so.


Maybe Happens

One thing that I have not shared much about is a very good and important thing that happened over the summer. Last summer had some real downers but those don’t subtract from our joy, and rejoicing, over a new victory.
Our second born had a rough time for a few years. A major accident at our church, febrile seizures, and getting very sick in Guatemala. When we returned home and began fostering, he embraced her fully as a toddler would, and his febrile seizures continued but thankfully he was not often running a fever. 9 months after her arrival, in the aftershocks of her sudden removal, some of his first sentences were heart wrenching. While we were fighting that battle, Asher began having many more seizures. Maybe stress and the emotional trauma of losing a baby like that did something, maybe it’s just coincidence. It was a very hard period. These were not just febrile seizures like they had thought and the medical bills started piling up.
There are many things we don’t know about epilepsy, and that doctors and scientists don’t know. It is a scary diagnosis. Asher began treatment, and despite changing jobs and insurance twice, and becoming part of medical, was able to see the same pediatric neurologist his whole life. Because of the Affordable Care Act, we were able to have continuation of care and not be penalized for his epilepsy. I tried going to the first neurologist we were referred to on one of our new plans at the time. It was a truly terrible experience and I could not imagine working with them to sort out appointments, let alone solutions, as we found ourselves on this path.
The first medication didn’t slow down the seizures. We gave it a good run but we saw the negative side effects and didn’t notice much relief. It was hard because he couldn’t tell us how it made him feel, and if he sensed anything different before or after his episodes. We slowly began a different medication–one which introducing too quickly to patients could end in fatality. Doctors said after more testing and overnights that they didn’t think he would outgrow epilepsy. I briefed babysitters and teachers and sunday school. I tried not to think about IEPs one day, or driving, or camp, or anything restricted on this bright eyed wonder.
He did well on the new medication and we could breathe once we reached a therapeutic dose with no rash outbreak. We were still dealing with collections, payments, and billing reductions but we were not documenting seizures. Eventually the grip on the phone when separated loosened. The spans of playing out of eyesight lengthened. The months between UCLA neurology visits and that $14 parking garage grew. He was pro at taking his pills. We were pro at fighting, I mean working, with the local pharmacy to help them keep their inventory up and refills regular.
As Asher’s Kindergarten graduation plans were taking shape, and no ambulance was ever called, we had another checkup. It was a slow breakthrough. With epilepsy they call seizures emerging under medication “breakthrough,” which is the opposite of any headway a parent wants to make. I was shocked to hear of a real breakthrough: the dr thought we could try titrating down, off the medication, to test the epilepsy. Maybe he was outgrowing it. Maybe it was different than they had thought. It had been over a year. No delays. No jumps in dosage. Maybe the prayers, the hopes, barely spoken aloud for fear it would ruin our ability to walk the prescribed, long road ahead, were coming true.
On my birthday, Asher took his last, now tiny dose of epilepsy medication. And there have been no breakthrough seizures during the months of transitioning off. His moods and energy seem to have panned out, from however the drugs affected his system, combined with the excited exhaustion of starting 1st grade. We don’t wonder if something is seizure, drug, or age/misbehavior/mood related now. It’s just C, a 5-year-old boy, learning. We are thrilled at his progress and health, for him, for us, and for the pharmacy on the corner. I don’t know when we can say he does not have epilepsy, when it will be far enough away that a glazed look doesn’t cause my 2nd take, but each day is closer to then.
To be sure, it has been a rough year on almost all accounts. Homes, literal and figurative, are burning down all around us. But this is quite the foil. We are so proud of this boy and his love and tenacity and incredibly excited that this is yet another new normal. This victory, this praise, deserves our tears, applause, and thanksgiving and I’m so glad to be able to share this today, in the midst of all the todayness that weighs heavy. We’ve learned so many lessons by his side. From the waiting, to the hurting, to the forgiving and the grieving, to the advocacy, to the pain of children’s hospitals, in which so many have stayed for far more time. We’ve learned to take things by the day, that anesthesiologists have their own groups, and nothing is for granted. We’ve seen how limited we are as parents, and how scary pre-existing conditions and medical bills can really, really be. And we’ve been encouraged to keep places of hope in our lives that defy reason, that may be hibernating, for an unexpected spring. Who knows, maybe your birthday is coming. Maybe the breakthrough is slow. Maybe because this maybe came true.